An opportunity as rare as the children we benefit.
An exclusive weekend only few will experience.
At a first-class resort destination for the world’s best musicians, a limited number of all-access sponsors will enjoy a special weekend of exceptional music, a bit of mingling and food and libations that will soothe the soul. It’s all for a good cause – to raise money and awareness for children with ultra rare diseases.
Have a little fun. Do a lot of good. It’s an experience to remember. Join us.
The Agenda.
| Friday October 1, 2021 | |
| 1-5 PM: | Arrival and check-in |
| 6-8 PM: | Cocktails and heavy hors d’oeuvres Live performance by local musicians – Celebrity guest sit in |
| Saturday October 2, 2021 | |
| 7-10 AM: | Breakfast on your own (Sponsor vouchers) |
| 10-6 PM: | Enjoy the day/tours |
| 6-8 PM: | Cocktails Dinner Silent auction CCF Event PresentationSpecial guest introductions Live auction |
| 8-9:30 PM: | Celebrity Jam featuring Joe Bonamassa |
| Sunday October 3, 2021 | |
| 7-10 AM: | Breakfast on your own (Sponsor vouchers) |
| 11 AM: | Check-out |
Saturday eveningAn exclusive sponsor only celebrity Jam
Saturday evening promises to be something very special. Aside from the live performance by none other than Joe Bonamassa, there will be some well-known celebrity friends joining us who believe in our cause. The food will be amazing and the auction items epic. You’ll take home enduring memories along with the satisfaction of knowing that you’ve helped support children who are desperate for life-changing treatments.
- A red carpet arrival for you and our celebrity friends
- Pictures, cocktails and some of LA’s finest food
- Meet and spend quality time with our celebrity guests
- Enjoy the Sunset Marquis’ exclusive, new music venue
- You’ll have the best seat in the house when Joe and his friends perform… and a few surprise guests.
Check out our celebrity gallery Children with ultra rare diseases need our help.
There is an urgent need for children with ultra-rare genetic diseases to gain equitable access to transformative genetic medicine that can change the course of their lives. Most of these children will face a severely altered life and 3 out of 10 will not survive to see their 5th birthday.
We can accelerate hope for millions of children as a result of scientific advances in gene therapy. Thus, treatments and cures are within reach so these children can once again hug their parents, walk, run, eat ice cream and, in many cases, live more normal lives.
Together, we can change a child’s life.
The reality is that many of these ultra-rare conditions affect small populations of children, thus the economics do not add up for pharmaceutical companies to develop therapeutic treatments. This is why a non-profit model, like the Columbus Children’s Foundation, offers hope and provides a clear path to accelerate development of transformative medicines.
We exist because every child deserves the same chance to live life to the fullest. That’s why we need your support.
